Inspiring families

There have been some amazing families that I have met recently. For most bereaved parents re-living the past is still quite traumatic and still holds mixed emotions, but to then throw themselves into fundraising ventures for charities etc, I do find extraordinary.

One particluar family that I met about 12 months ago, set up their own fund in 2011 called ‘4in3’ the Mason Minniss Fund in memory of their late son Mason, who had MLD. The fund raises money exclusively for the WCH Foundation which is the official fundraising charity for the WCH hospital. The proceeds directly aid the Paediatric Palliative care Unit, here in Adelaide. To date they have raised in excess of $60,000.00.

The ‘4in3’ the Mason Minniss Fund holds a major fundraiser each year “A ladies night amongst the butterflies” where goods and services are donated by businesses, organisations, and anyone wishing to be involved, and then auctioned off.

It also holds other fundraisers throughout the year. Over Christmas it also delivered hampers to bereaved families of the WCH, donations were made by businesses and kind-hearted individuals.
This bereaved family like so many before it have turned a life-changing experience into a positive one!

For more information you can contact Cheryl or Rob Minniss by email: masonminnissfund@gmail.com

www.facebook.com/4in3themasonminissfund

www.twitter.com/cherminni

For more information on MLD:

http://en.wikipedia.org/wiki/Metachromatic_leukodystrophy

https://www.facebook.com/#!/supportALDS

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Cody

I fell pregnant during Luke’s treatment in 1998. It was a normal pregnancy, but having a sick son to deal with certainly kept me occupied.

It was during my second trimester, that things went pear-shaped. Luke was undergoing some tests at the hospital, when I mentioned to his nurses that I hadn’t felt any movement!

They sent me off for an ultrasound and I was shocked by the news. Our baby had no heart beat…I had suffered a stillbirth at 26 weeks gestation.

Unfortunately I needed to be induced so that I could go through labour and deliver the baby.

My obstetrician was able to induce me at the hospital and some hours later on 02/09/1998…Cody Alan came into and subsequently left this earth.

There was no fanfare, just alot of sadness and grief that out little son never had the opportunity to open his eyes and meet us. Nor did he have the chance to feel the unconditional love penetrate through his very being.

This was a tragic day for my husband and I, as well as for our families. We organised a private funeral where Cody Alan was laid to rest.

A fleeting moment 

our chance to connect

my love was lost

when you were laid to rest.

Wrapped in a blanket

a bonnet on your head

these photos are all

that we have left.

 

The Beginning

Well, finally I have started my own blog, for a number of reasons.

  • To write about my journey as a bereaved mother.
  • To create awareness about many rare diseases,of which my daughter has been recently diagnosed with.
  • To provide information and resources on some amazing bereaved families.
  • To also share stories about other incredibly gifted people I have been privileged to know.
  • To also shamelessly plug a new book I am writing.